ResQ Family Questionnaire |
ResQ Family: Impact of Respiratory Syncytial Virus hospitalisation on Quality of life of Families
Dear parent, dear caregiver,
Thank you for your interest in the study "ResQ Family: Impact of Respiratory Syncytial Virus (RSV) hospitalisation on Quality of life of Families – a multi-country study". We kindly ask you today as a parent or caregiver of a child experiencing or having recently experienced hospitalisation due to Respiratory Syncytial Virus (RSV) infection in Germany, France, Italy or Sweden to participate in this survey.
RSV is the most common cause of paediatric bronchiolitis and pneumonia – which are both a type of lower respiratory tract infection. Globally it accounts for 2.2 million hospitalisations in infants below 12 months of age (in 2019). By the age of two years nearly all infants will be infected with RSV at least once. While most RSV cases are mild, we can’t predict which infants could get seriously ill and end up in hospital. When the RSV infection takes a severe course it might have in particular considerable impact on the health-related quality of life of families. However, until now, there is currently no adequate information on how infection and hospitalisation due to RSV in infants impacts affected families in a holistic manner.
Having unique, first-hand insights on the burden of RSV and its impact on affected families will provide scientific evidence and finally help us raise awareness among healthcare professionals and patient representatives, decision-makers and the general public.
Our study focuses on children up to 24 months with a hospital stay due to RSV infection of at least 12 hours in total. The hospital admission should not be longer than 4 weeks ago. Since we need to cover a wide range of possible disease manifestations caused by RSV, some of the questions might cause distress considering your personal situation and experience. You may of course stop your participation at any time. Ideally the parent or caregiver who has taken care of the child most of time during hospitalisation fills in the questionnaire. Completing the survey will take no longer than 20 minutes.
Thank you for your interest in the study "ResQ Family: Impact of Respiratory Syncytial Virus (RSV) hospitalisation on Quality of life of Families – a multi-country study". We kindly ask you today as a parent or caregiver of a child experiencing or having recently experienced hospitalisation due to Respiratory Syncytial Virus (RSV) infection in Germany, France, Italy or Sweden to participate in this survey.
RSV is the most common cause of paediatric bronchiolitis and pneumonia – which are both a type of lower respiratory tract infection. Globally it accounts for 2.2 million hospitalisations in infants below 12 months of age (in 2019). By the age of two years nearly all infants will be infected with RSV at least once. While most RSV cases are mild, we can’t predict which infants could get seriously ill and end up in hospital. When the RSV infection takes a severe course it might have in particular considerable impact on the health-related quality of life of families. However, until now, there is currently no adequate information on how infection and hospitalisation due to RSV in infants impacts affected families in a holistic manner.
| With this survey, we aim to collect your valuable insight on how you and your family experienced the RSV episode of your child – at home and in the hospital setting. |
Having unique, first-hand insights on the burden of RSV and its impact on affected families will provide scientific evidence and finally help us raise awareness among healthcare professionals and patient representatives, decision-makers and the general public.
Our study focuses on children up to 24 months with a hospital stay due to RSV infection of at least 12 hours in total. The hospital admission should not be longer than 4 weeks ago. Since we need to cover a wide range of possible disease manifestations caused by RSV, some of the questions might cause distress considering your personal situation and experience. You may of course stop your participation at any time. Ideally the parent or caregiver who has taken care of the child most of time during hospitalisation fills in the questionnaire. Completing the survey will take no longer than 20 minutes.