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The Coronavirus/COVID-19 pandemic creates exceptional challenges, especially for the care of the most vulnerable groups of patients – such as sick and preterm born children. With this survey, we aim to explore parents’ experiences related to these challenges as they play a crucial role in the care of their babies – not only at home but also in the hospital setting.

We therefore kindly ask you as parents of sick and preterm infants who were born during this Coronavirus/COVID-19 pandemic to participate in this survey. Please be aware that some of the questions might cause distressing reactions considering your personal situation and experience. You may of course stop your participation at any time. Completing the survey will take approx. 15 minutes.

Ethics and data use: EFCNI handles your data lawfully and confidentially, in accordance with the General Data Protection Regulation (GDPR). No person-related data will be stored or published. Your data will be evaluated anonymously, it will not be stored or passed on to third parties and will not be used for any other purpose than the one mentioned above. Surveymonkey, the tool used for this survey, grants compliance with the GDPR and the Privacy Shield. In accordance with the GDPR, you have the right to information, the right to delete your data and can withdraw this declaration of consent at any time. The Ethics Committee of Maastricht UMC+ officially waived the need for ethics approval.

This survey is carried out by the Scientific Affairs Department of the European Foundation for the Care of Newborn Infants (EFCNI) (www.efcni.org) in collaboration with representatives of parent organisations, COINN (Council of International Neonatal Nurses), ESPR (European Society for Paediatric Research), NIDCAP (Newborn Individualized Developmental Care and Assessment Program), and UENPS (Union of European Neonatal & Perinatal Societies).

If you have any questions, comments or concerns regarding the study please contact: research@efcni.org

Thank you for your participation and support!

European Foundation for the Care of Newborn Infants (EFCNI)
and Global Alliance for Newborn Care (GLANCE)

Question Title

* 1. I confirm to have read and understood the information provided above and consent to the use of my de-identified data.

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