The ERKNet working group on metabolic and stone diseases is pleased to present a survey on the rare condition of Fanconi Bickel Syndrome, also known as Glycogenosis XI. We are asking you to complete a short questionnaire requiring data on the clinical feature, diagnosis, therapy, and outcome of your FBS patients.
The survey is open until 15th December 2020.

Many thanks for your collaboration.
Your ERKNet Team
Francesco Trepiccione and Aude Servais 

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* 1. Country of practice

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* 2. Center (name and city)

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* 3. E-mail address

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