Dear colleagues, 

We invite you to help expand our understanding of ANCA associated vasculitis in childhood by participating in our short online survey. The aim is to gain a better understanding of the burden of this disease, current treatment practices and long-term outcomes. The survey will take approximately 15 minutes if the patients' records are to hand. We are particularly interested in children who present ESKD without any improvement in renal function, as this is a cohort that may be difficult to identify and capture accurately. 
We aim to publish the results of this survey and centers contributing patients will be acknowledged. Those centers contributing three or more patients will have a co-authorship in the planned publication of these results. Those contributing fewer than three patients will be listed in the acknowledgments as participating investigators and appear in PubMed as collaborators.

The survey asks for data of single patients. If you want to enter data of more than one patient, please hit the hyperlink again after saving the previous entry. 

We are very grateful for your support with this project. 

Your ERKNet Team
on behalf of
Marina Vivarelli,  Bambino Gesù Children´s Hospital Rome (marina.vivarelli@opbg.net) and Kjell Tullus, Great Ormond Street Hospital London (kjell.tullus@gosh.nhs.uk)



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* 1. Please enter your name

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* 2. Please enter your E-mail address

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* 3. Unique Identifier (hospital name and city)

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* 4. Current age of patient (years)

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* 5. Duration of follow up - from the first presentation to the most recent visit (months)

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* 6. Gender of patient 

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* 7. Ethnicity of patient

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* 8. Clinicopathologic variant

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